Suicide after 6 years in bed with Chronic LD

[Kevin Raggett]

Hello,

I have never posted here before.

For the most part, I am too ill to use my computer. However, when I feel
well enough (a rare but wonderful feeling)
I tend to use it for pleasure (no, not surfing porn sites but watching DVD's
or just looking at sites which have
nothing to do with Lyme).

It took me a long time to work out what was wrong with me and 3 years in bed
with Chronic Fatigue Syndrome
(ha ha ha). The Internet and 2 visits to America showed me +ve for Lyme both
IgG, IgM and PCR. Thanks to the
many people who have tried to help me - if only you could be my Doctor's
perhaps the dwindling hope I have could be
rekindled and new fidght put into me.

My return to the UK where we are 10 or more years behind in LD (i.e. there
is no such thing as Chrnonic LD and it
certainly does not put you in bed indefinetely) led me tot my fight for IV
ABX.

They refused me this medication so I paid for it and infused it myself for 3
months - it had no apparent effect.

I then moved onto virtually every LD antibiotic you have ever heard of for
2.5 years. On many occasions I nearly died
as the battle began. I had oozing sores all over my body, my joints leaked a
clear burning toxin, so did my muscles, scalp
and pretty much everywhere else. There was so much spirochete in me I should
have been dead.

At the time of onset I was 34 years of age (I now trace the initial tick
bites which can still be seen on my scalp to age 25
when I frequented a deer park for walks, relaxation and the beginning of the
end of my life) and after 6 years I am still very ill.
The constannt battle for treatment, the massive debt I am in and the total
alck of improvement in my general health have
led me to the point of considering suicide seriously.

Partly, this message is one of those "Cries for Help" I guess. Another part
is addressing the question "Were we born to suffer
or to live healthy and happy lives?). I think the answer is obvious.

I recently had another Hickman put in after travelling to the USA. I tyen
began to administer IV Airtromycin and as ever yet more
filth oozed and sweated out of me. After 12 weeks I became very unwell and
stopped the anitbiotics. My doctor will not see me at
home and I have no contact or help from any able-bodied person, so I di not
know what was happening.

Well, I was admitted with life threatening Sepsis (multiple organisms
cultured in my blood, 4 to be exact) to my local hospital
where I was given 2 weeks of IV to control them.

I am now home again and have been asleep for> 10 days. I am sweating, weak
and feel like calling it a day).

I have tried EVERYTHING :

Hugh doses of antibiotics.
Collodial Silver (Hype and Rubbish).
RIFE machines (I feel thse do have an effect against it but cannot kill
it).
Dr Zhangs protocol.
+ many more trust me.

Trying to be positive, I can say that a large amount of LD has been killed
in me.
The sores all over my body have reduced vastly.

Problem is, it is still largely in the nervous system and I cannot seem to
get past
this stage,. If I feel well 3 days a month I am lucky.

Anybody else out there this bad ? I'm sure there is ..................

Anybody think I should keep going. Would not blame if you said NO, because
Iam saying and feeling NO right now.

This is NOT a self pity post, although I admit it is pretty damn miserable -
6 years of this
and I feel kind of warranted in being a bit pissed off.

I just feel I cannot take much more and like many of us CANNOT GET years of
IV as required for such a high sprochete load.

They just want us to go away and die and in my case I think they may well
have succeeded.

If you would like to contact me (perhaps 'like' is the wrong word) with any
positive stories my email address
is ***@morganspreadtrad.demon.co.uk.

PLEASE : NO INSULTS, I QAM NOT IN THE MOOD

Take care all of you - I sincerly hope you are doing better than I

Kevin M Raggett, Manchester, UK

[Lisam01502]

Kevin, you have the misfortune to have LD in the UK - one of the worst places
on earth to have it. Not because of virulence of the spirochaete, but because
of virulence of the medical authorities (and the government, and the media)
who are in total DENIAL, as they are in parts of the States and Europe
artificially designated "non-endemic" areas.
There are an estimated 250 000 - 300 000 people in the UK diagnosed with
chronic fatigue (known here as Myalgic Encephalitis or M.E.).Of these, 25,000
are children.
How many of them are really Kevins?
Southampton, how long do you think you can carry on with your crimes? Look what
you have done to this man! Look what you have done to so many of us!
Southampton, the bell tolls for you!
Lisa Masterson

[Frank Andreas de Groot]

- if only you could be my Doctor's perhaps the dwindling hope I have could be
rekindled and new fidght put into me.

Some advice: Forget about doctors, they are all bad, including the most
knowledgeable "LLMD's".

My return to the UK where we are 10 or more years behind in LD (i.e. there
is no such thing as Chrnonic LD and it certainly does not put you in bed

indefinetely) led me tot my fight for IV ABX.


Believe me, NEVER will any European country wisen up about Lyme, neither will
they wisen up to the fact that Fibromyalgia, MS, Cronhns etc. are infections as
well. It's about money, politics, ego and ignorance, not about medicine.

They refused me this medication so I paid for it and infused it myself for 3
months - it had no apparent effect.

No, there is no difference between IV and orals, when you do the orals
correctly.
IV has huge risks, better not to mess with that.

I then moved onto virtually every LD antibiotic you have ever heard of for 2.5

years.

I did that too. A bad idea, I got systemic candidiasis that is finally curing,
after very heavy treatment.


On many occasions I nearly died

as the battle began. I had oozing sores all over my body, my joints leaked a
clear burning toxin,

??
Explain..


so did my muscles, scalp

and pretty much everywhere else. There was so much spirochete in me I should
have been dead.

I know the feeling. I had skin manifestations for several years.

At the time of onset I was 34 years of age (I now trace the initial tick
bites which can still be seen on my scalp to age 25
when I frequented a deer park for walks, relaxation and the beginning of the
end of my life) and after 6 years I am still very ill.

Of course. It will kill you if you don't treat it.
Take doxycycline, 600 mg/day. It's winter soon so the sun won't harm you.

The constannt battle for treatment, the massive debt I am in and the total
alck of improvement in my general health have led me to the point of

considering suicide seriously.


I managed to get 99% better (took 4 years) without incurring debts, by importing
abx. from Czechia, Thailand etc. IV is not neccessary.

Partly, this message is one of those "Cries for Help" I guess. Another part
is addressing the question "Were we born to suffer
or to live healthy and happy lives?). I think the answer is obvious.

Nature doesn't care. Survival of the fittest. If there is a God, God doesn't
care either.
It's all up to yourself I'm afraid.

filth oozed and sweated out of me. After 12 weeks I became very unwell and
stopped the anitbiotics. My doctor will not see me at
home and I have no contact or help from any able-bodied person, so I di not
know what was happening.

You're killing yourself, you'll get fungemia, candidiasis. That's even less
curable and much more deadly than Lyme.

I am now home again and have been asleep for> 10 days. I am sweating, weak
and feel like calling it a day).

If it is of any help, it could be worse. I could not sleep for days on end, that
alone can kill a person by sheer exhaustion.
For half a year, I thought I could die any second due to cardiac failure.
For 2 more years, I thought I could die any day due to cardiac failure.
I am now at a stage that I will die after 6 weeks w/o abx. and get very very ill
after just 10, 14 days without.
Still the sx. *with* abx. are now very bearable, except for some fatigue and
insomnia.

Hugh doses of antibiotics.
Collodial Silver (Hype and Rubbish).
RIFE machines (I feel thse do have an effect against it but cannot kill
it).
Dr Zhangs protocol.
+ many more trust me.

Do literature research instead of wasting money on useless crap.
Use your PC, Google. Use you brain. Get doxycycline sent to you from India or
Thailand.

Trying to be positive, I can say that a large amount of LD has been killed
in me. The sores all over my body have reduced vastly.

Great. The mental problems take longest to resolve but it will happen suddenly.
Every month you should feel better.
Remember, forget about non-CNS antibiotics!
The only stuff that will help you is very-highly dosed Amoxicillin (12 grams a
day or double that) and doxy or minocycline.

Problem is, it is still largely in the nervous system and I cannot seem to
get past this stage,. If I feel well 3 days a month I am lucky.

Keep on treating with highly-dosed doxy and PULSE it, when you feel better stop
it, then when you slide, start again. This works better than continuous use.

Anybody else out there this bad ? I'm sure there is ..................

I was like you or worse.
Also in bed for months, etc.

Anybody think I should keep going. Would not blame if you said NO, because
Iam saying and feeling NO right now.

Well, if you have barbiturates you could kill yourself and perhaps, if I weren't
so determined, I would have done that, given the chance, but being sick like
that gives you tremendous insight into suffering and compassion so it's worth it
to try to fix it. I though I would never cure, but I now enjoy life again.

This is NOT a self pity post, although I admit it is pretty damn miserable -
6 years of this and I feel kind of warranted in being a bit pissed off.

I believe you.
Most people think that people who talk about suicide are self-pitiers or
attention seekers, while this is nonsense.

I just feel I cannot take much more and like many of us CANNOT GET years of
IV as required for such a high sprochete load.

I thought you needed IV too, because everybody siad that. Until I started to
compare the results of IV with that of highly dosed orals. In fact IV is WORSE!
Do some research, you'll be amazed. IV simply doesn't work as well as believed.
There is nothing magic about IV. It's all about MIC. You can reach MIC with doxy
orally as well.

They just want us to go away and die and in my case I think they may well
have succeeded.

Stay away from western doctors. They don't know about medicine.
Be your own doctor. Forget about IV. Orals will cure you but it will go slowly.

Health & wisdom,
Frank

[Lisam01502]

Post by Frank Andreas de Groot
Well, if you have barbiturates you could kill yourself and perhaps, if I weren't
so determined, I would have done that, given the chance, b

No! Don't tell him to kill himself!
The answer is to fight back, not to kill ourselves.
Kathleen has named the main crooks who are perverting LD science. Now they want
to jail her. Everyone needs to get on the phone now to the media and tell them
what is going on.
Try this number in Washington:

Mark Benjamin (UPI)
202 303 3769

Tell him there are people on both sides of the Atlantic wanting to commit
suicide because of the way the medical profession has left them, thanks to
criteria drawn up to suit the marketing needs of vaccine, insurance and
test-kit companies.Science never came in to it.
Lisa

[Frank Andreas de Groot]

Post by Lisam01502
Kathleen has named the main crooks who are perverting LD science. Now they want
to jail her. Everyone needs to get on the phone now to the media and tell them
what is going on.
Mark Benjamin (UPI)
202 303 3769

I'm sorry Lisa, but you can take me off the list of people who are trying to
help Kathleen.
You are abusing this thread for your own purposes, and you are telling me what
to do.
Both not a good idea.

[Lisam01502]

Frank, if you feel I am abusing Kathleen's case for my own purposes, then why
not ask Kathleen herself if she feels that I am?

If you want to come off the support group for Kathleen, that's fine. Having
seen what you have written to the poor man who wants to commit suicide in
England, I am not sure that you will be such a help to Kathleen. What are you
going to do, advise her to take an overdose of barbiturates too?
We don't need more suicides. Or even more homicides. We need to start fighting
back.
Lisa

[Frank Andreas de Groot]

Post by Lisam01502
Frank, if you feel I am abusing Kathleen's case for my own purposes, then why
not ask Kathleen herself if she feels that I am?

I didn't say that. You are abusing the "suicidal" guy's cry for help to plug
your own agenda.
The guy needs help, not using him to divert the issue to Kathleen's case.

Post by Lisam01502
If you want to come off the support group for Kathleen, that's fine. Having
seen what you have written to the poor man who wants to commit suicide in
England, I am not sure that you will be such a help to Kathleen.

You are a despicable person.

I wrote:

1) That there is hope
2) That there are positive things in being sick too
3) That it could be worse
4) I gave him advice how to get cheap treatment
5) I took him seriously

etc.

Post by Lisam01502
What are you going to do, advise her to take an overdose of barbiturates too?

I would advise her to clean up het website a little, so that it doesn't appear
to be the ravings of a paranoid lunatic, and I would advise her to agree with
the pych. evaluation under protest, and I would advise her to tone down the
retoric 5 nothches in court, advise her to make friends with her family, etc.
etc.

Post by Lisam01502
We don't need more suicides. Or even more homicides. We need to start fighting

back.

Good luck.
BTW, both you & Kathleen are remarkably irresponsible people.
First you put I don't know how many kids into this overpopulated world, then you
divorce,
then somehow they all get Lyme, then somehow everybody hates you and they take
away/threaten to take away your kids.

Perhaps you should do some soul-searching?
"How to win friends and influence people".

[Lisam01502]

Yes, the guy needs help, and the help he needs is not the advice to take an
overdose of barbiturates. The help he needs most of all is for the Uk
Department of Health to tell the truth about Lyme to its own medical
profession, so that they can diagnose and treat (and prevent) the damn disease.

Then they wouldnt have to invent false diagnoses and take people's children
away on false allegations.

As for your bizarre male chauvinist comments about women having too many
children, I would say that your mother certainly had one too many.

[Frank Andreas de Groot]

BTW *if* he decides to take the barbiturates,
he should take anti-vomit pills half a day before,
drink a lot of alcohol with the pills and put a garbage bin liner with an
elastic band over his head.
Also: Lock the door and make sure nobody will visit you.

We won't want him to end up worse than he is already :)

But I am sure that he can summon the strength to try doxy again.
I take veterinary doxy which costs almost nothing if you let it sent by mail
from India, Thailand or Russia (you need to find a friend there, through USENET
perhaps).

It gave me back most of my life.

Post by Lisam01502
As for your bizarre male chauvinist comments about women having too many
children, I would say that your mother certainly had one too many.

What is "male chauvinist" about saying that putting children into this world is
irresponsible, (especially when it's done by inhabitants of over-consuming
countries)? The father was just as irresponsible as you were.

[Peace]

Post by Lisam01502
Yes, the guy needs help, and the help he needs is not the advice to take an
overdose of barbiturates. The help he needs most of all is for the Uk
Department of Health to tell the truth about Lyme to its own medical
profession, so that they can diagnose and treat (and prevent) the damn disease.
Then they wouldnt have to invent false diagnoses and take people's children
away on false allegations.
As for your bizarre male chauvinist comments about women having too many
children, I would say that your mother certainly had one too many.

Um... I think you are totally way off in both what Frank wrote and what
you have wrote here in my opinion. I did not in any way feel Frank was
telling this guy to commit suicide, he just wasn't demanding this man to
NOT commit suicide which is often the wrong thing to do when someone
might be contemplating it. I felt he handled it incredibly well and had
a great feeling about response.

I was, however, off-put by your response to this man. You seemed to be
just raving out Kathleen's situation which I do think is tragic. But it
seemed like you were using a man's heartfelt outreach for a soapbox and
it was unnerving and sad. It really taints my view of Kathleen's case
actually and I think you're harming her more than helping her here. I
can totally understand your emotions in all this but sometimes we need
to reign it in, in order to more effectively get our information and
view across. Then we can go home and scream and punch a pillow over it
in private.

Also, I did not feel Frank's statements about overpopulation were
chauvinistic meaning against women in particular although they were
cold. (I'm surprised he wasn't more nasty to you actually the way you
jumped on him for nothing.) While I don't share his feelings about
having children, there are a lot of people who feel that all people who
have children in this day and age are just "breeders" and are idiots or
selfish. I don't agree with this but that doesn't mean I would attack
him for it or make statements about this comments that just aren't true.
I'm sorry if this makes you angry.

These are my opinions. Take it or leave it just like everyone else's
comments on the internet.

Jen :)

[Lisam01502]

Post by Peace
While I don't share his feelings about
having children, there are a lot of people who feel that all people who
have children in this day and age are just "breeders" and are idiots or
selfish. I don't agree with this but that doesn't mean I would attack
him for it or make statements about this comments that just aren't true.
I'm sorry if this makes you angry.

Well, that's a really sensible thing to say, isn't it. Let's all stop having
kids, right? And end the human race.

Does anyone out here have anything sensible to say?

[aurora]

Has anyone ever directed you to Dr. Wright

1997.31 in reply to 1997.30


Yes - you are right, he is located in the UK - aren't we lucky!!

His address is

Dr. A.J. Wright, The Complete Hormone Clinic, 57 Chorley New Road,
Bolton BL1 4QR. Telephone number 01204

Post by Frank Andreas de Groot

- if only you could be my Doctor's perhaps the dwindling hope I have could be
rekindled and new fidght put into me.

Some advice: Forget about doctors, they are all bad, including the most
knowledgeable "LLMD's".

My return to the UK where we are 10 or more years behind in LD (i.e. there
is no such thing as Chrnonic LD and it certainly does not put you in bed

indefinetely) led me tot my fight for IV ABX.
Believe me, NEVER will any European country wisen up about Lyme, neither will
they wisen up to the fact that Fibromyalgia, MS, Cronhns etc. are infections as
well. It's about money, politics, ego and ignorance, not about medicine.

They refused me this medication so I paid for it and infused it myself for 3
months - it had no apparent effect.

No, there is no difference between IV and orals, when you do the orals
correctly.
IV has huge risks, better not to mess with that.

I then moved onto virtually every LD antibiotic you have ever heard of for 2.5

years.
I did that too. A bad idea, I got systemic candidiasis that is finally curing,
after very heavy treatment.
On many occasions I nearly died

as the battle began. I had oozing sores all over my body, my joints leaked a
clear burning toxin,

??
Explain..
so did my muscles, scalp

and pretty much everywhere else. There was so much spirochete in me I should
have been dead.

I know the feeling. I had skin manifestations for several years.

At the time of onset I was 34 years of age (I now trace the initial tick
bites which can still be seen on my scalp to age 25
when I frequented a deer park for walks, relaxation and the beginning of the
end of my life) and after 6 years I am still very ill.

Of course. It will kill you if you don't treat it.
Take doxycycline, 600 mg/day. It's winter soon so the sun won't harm you.

The constannt battle for treatment, the massive debt I am in and the total
alck of improvement in my general health have led me to the point of

considering suicide seriously.
I managed to get 99% better (took 4 years) without incurring debts, by importing
abx. from Czechia, Thailand etc. IV is not neccessary.

Partly, this message is one of those "Cries for Help" I guess. Another part
is addressing the question "Were we born to suffer
or to live healthy and happy lives?). I think the answer is obvious.

Nature doesn't care. Survival of the fittest. If there is a God, God doesn't
care either.
It's all up to yourself I'm afraid.

filth oozed and sweated out of me. After 12 weeks I became very unwell and
stopped the anitbiotics. My doctor will not see me at
home and I have no contact or help from any able-bodied person, so I di not
know what was happening.

You're killing yourself, you'll get fungemia, candidiasis. That's even less
curable and much more deadly than Lyme.

I am now home again and have been asleep for> 10 days. I am sweating, weak
and feel like calling it a day).

If it is of any help, it could be worse. I could not sleep for days on end, that
alone can kill a person by sheer exhaustion.
For half a year, I thought I could die any second due to cardiac failure.
For 2 more years, I thought I could die any day due to cardiac failure.
I am now at a stage that I will die after 6 weeks w/o abx. and get very very ill
after just 10, 14 days without.
Still the sx. *with* abx. are now very bearable, except for some fatigue and
insomnia.

Hugh doses of antibiotics.
Collodial Silver (Hype and Rubbish).
RIFE machines (I feel thse do have an effect against it but cannot kill
it).
Dr Zhangs protocol.
+ many more trust me.

Do literature research instead of wasting money on useless crap.
Use your PC, Google. Use you brain. Get doxycycline sent to you from India or
Thailand.

Trying to be positive, I can say that a large amount of LD has been killed
in me. The sores all over my body have reduced vastly.

Great. The mental problems take longest to resolve but it will happen suddenly.
Every month you should feel better.
Remember, forget about non-CNS antibiotics!
The only stuff that will help you is very-highly dosed Amoxicillin (12 grams a
day or double that) and doxy or minocycline.

Problem is, it is still largely in the nervous system and I cannot seem to
get past this stage,. If I feel well 3 days a month I am lucky.

Keep on treating with highly-dosed doxy and PULSE it, when you feel better stop
it, then when you slide, start again. This works better than continuous use.

Anybody else out there this bad ? I'm sure there is ..................

I was like you or worse.
Also in bed for months, etc.

Anybody think I should keep going. Would not blame if you said NO, because
Iam saying and feeling NO right now.

Well, if you have barbiturates you could kill yourself and perhaps, if I weren't
so determined, I would have done that, given the chance, but being sick like
that gives you tremendous insight into suffering and compassion so it's worth it
to try to fix it. I though I would never cure, but I now enjoy life again.

This is NOT a self pity post, although I admit it is pretty damn miserable -
6 years of this and I feel kind of warranted in being a bit pissed off.

I believe you.
Most people think that people who talk about suicide are self-pitiers or
attention seekers, while this is nonsense.

I just feel I cannot take much more and like many of us CANNOT GET years of
IV as required for such a high sprochete load.

I thought you needed IV too, because everybody siad that. Until I started to
compare the results of IV with that of highly dosed orals. In fact IV is WORSE!
Do some research, you'll be amazed. IV simply doesn't work as well as believed.
There is nothing magic about IV. It's all about MIC. You can reach MIC with doxy
orally as well.

They just want us to go away and die and in my case I think they may well
have succeeded.

Stay away from western doctors. They don't know about medicine.
Be your own doctor. Forget about IV. Orals will cure you but it will go slowly.
Health & wisdom,
Frank

[Kevin Raggett]

Hi,

You mentioned this doctor and thank you for trying.

I saw him at the very beginning of my illness when he said I had ME.

He prescribed me MELATONIN and told me I would be fine. I then spent
the next 3 years in bed. A very knowledgeable person onviously. He is
connected with another doctor (whose name escapes me) who used to
be at the National ME centre in London. He setup a pratice in Harley Street
to treat ME. All of it was fraud and all of it was despicable. He has since
closed this
practice as bedridden, penniless people tend not to have thousands of pounds
to spend
on useless treatments.

He's a fraudulent pig, like so many who have labelled 100'000's of people
with ME or CFIDS and who do not know they have Lyme.

I have come across many in my search and they are disgusting.

Apart from a minority of good doctor's, most of them are arrogant, ignorant,
self serving individuals who make lawyers look like angels.

I'm sure most of us would agree.

Kevin Raggett

[aurora]

Oh my I am sorry I mentioned him... I thought he was treating borrelia
with theraputic doses of arsenic intramuscular injections... and also
with somento and some other things.... I do not live in England. I am
from Texas. I only know about the doc, from his work with women who
write on about.com thyroid forum... They all had good things to say
about him... I will keep what you said in mind and will not recommend
him again.... sorry.
Angela

Post by Kevin Raggett
Hi,
You mentioned this doctor and thank you for trying.
I saw him at the very beginning of my illness when he said I had ME.
He prescribed me MELATONIN and told me I would be fine. I then spent
the next 3 years in bed. A very knowledgeable person onviously. He is
connected with another doctor (whose name escapes me) who used to
be at the National ME centre in London. He setup a pratice in Harley Street
to treat ME. All of it was fraud and all of it was despicable. He has since
closed this
practice as bedridden, penniless people tend not to have thousands of pounds
to spend
on useless treatments.
He's a fraudulent pig, like so many who have labelled 100'000's of people
with ME or CFIDS and who do not know they have Lyme.
I have come across many in my search and they are disgusting.
Apart from a minority of good doctor's, most of them are arrogant, ignorant,
self serving individuals who make lawyers look like angels.
I'm sure most of us would agree.
Kevin Raggett

[DD]

I think Frank is giving you the best advice, sound and wise.

I also am curious about what you are experiencing with the oozing
joint joint and sores example. Could/Would you elaborate?

Frank: I am rarely on the net these days due to eye and back issues.
But, when I have been, so few the last year, I always read your
replies on this site, usually learn or am reminded of something and
end up with a warm feeling and, often a smile. My very best.....DD

Post by Frank Andreas de Groot

- if only you could be my Doctor's perhaps the dwindling hope I have could be
rekindled and new fidght put into me.

Some advice: Forget about doctors, they are all bad, including the most
knowledgeable "LLMD's".

My return to the UK where we are 10 or more years behind in LD (i.e. there
is no such thing as Chrnonic LD and it certainly does not put you in bed

indefinetely) led me tot my fight for IV ABX.
Believe me, NEVER will any European country wisen up about Lyme, neither will
they wisen up to the fact that Fibromyalgia, MS, Cronhns etc. are infections as
well. It's about money, politics, ego and ignorance, not about medicine.

They refused me this medication so I paid for it and infused it myself for 3
months - it had no apparent effect.

No, there is no difference between IV and orals, when you do the orals
correctly.
IV has huge risks, better not to mess with that.

I then moved onto virtually every LD antibiotic you have ever heard of for 2.5

years.
I did that too. A bad idea, I got systemic candidiasis that is finally curing,
after very heavy treatment.
On many occasions I nearly died

as the battle began. I had oozing sores all over my body, my joints leaked a
clear burning toxin,

??
Explain..
so did my muscles, scalp

and pretty much everywhere else. There was so much spirochete in me I should
have been dead.

I know the feeling. I had skin manifestations for several years.

At the time of onset I was 34 years of age (I now trace the initial tick
bites which can still be seen on my scalp to age 25
when I frequented a deer park for walks, relaxation and the beginning of the
end of my life) and after 6 years I am still very ill.

Of course. It will kill you if you don't treat it.
Take doxycycline, 600 mg/day. It's winter soon so the sun won't harm you.

The constannt battle for treatment, the massive debt I am in and the total
alck of improvement in my general health have led me to the point of

considering suicide seriously.
I managed to get 99% better (took 4 years) without incurring debts, by importing
abx. from Czechia, Thailand etc. IV is not neccessary.

Partly, this message is one of those "Cries for Help" I guess. Another part
is addressing the question "Were we born to suffer
or to live healthy and happy lives?). I think the answer is obvious.

Nature doesn't care. Survival of the fittest. If there is a God, God doesn't
care either.
It's all up to yourself I'm afraid.

filth oozed and sweated out of me. After 12 weeks I became very unwell and
stopped the anitbiotics. My doctor will not see me at
home and I have no contact or help from any able-bodied person, so I di not
know what was happening.

You're killing yourself, you'll get fungemia, candidiasis. That's even less
curable and much more deadly than Lyme.

I am now home again and have been asleep for> 10 days. I am sweating, weak
and feel like calling it a day).

If it is of any help, it could be worse. I could not sleep for days on end, that
alone can kill a person by sheer exhaustion.
For half a year, I thought I could die any second due to cardiac failure.
For 2 more years, I thought I could die any day due to cardiac failure.
I am now at a stage that I will die after 6 weeks w/o abx. and get very very ill
after just 10, 14 days without.
Still the sx. *with* abx. are now very bearable, except for some fatigue and
insomnia.

Hugh doses of antibiotics.
Collodial Silver (Hype and Rubbish).
RIFE machines (I feel thse do have an effect against it but cannot kill
it).
Dr Zhangs protocol.
+ many more trust me.

Do literature research instead of wasting money on useless crap.
Use your PC, Google. Use you brain. Get doxycycline sent to you from India or
Thailand.

Trying to be positive, I can say that a large amount of LD has been killed
in me. The sores all over my body have reduced vastly.

Great. The mental problems take longest to resolve but it will happen suddenly.
Every month you should feel better.
Remember, forget about non-CNS antibiotics!
The only stuff that will help you is very-highly dosed Amoxicillin (12 grams a
day or double that) and doxy or minocycline.

Problem is, it is still largely in the nervous system and I cannot seem to
get past this stage,. If I feel well 3 days a month I am lucky.

Keep on treating with highly-dosed doxy and PULSE it, when you feel better stop
it, then when you slide, start again. This works better than continuous use.

Anybody else out there this bad ? I'm sure there is ..................

I was like you or worse.
Also in bed for months, etc.

Anybody think I should keep going. Would not blame if you said NO, because
Iam saying and feeling NO right now.

Well, if you have barbiturates you could kill yourself and perhaps, if I weren't
so determined, I would have done that, given the chance, but being sick like
that gives you tremendous insight into suffering and compassion so it's worth it
to try to fix it. I though I would never cure, but I now enjoy life again.

This is NOT a self pity post, although I admit it is pretty damn miserable -
6 years of this and I feel kind of warranted in being a bit pissed off.

I believe you.
Most people think that people who talk about suicide are self-pitiers or
attention seekers, while this is nonsense.

I just feel I cannot take much more and like many of us CANNOT GET years of
IV as required for such a high sprochete load.

I thought you needed IV too, because everybody siad that. Until I started to
compare the results of IV with that of highly dosed orals. In fact IV is WORSE!
Do some research, you'll be amazed. IV simply doesn't work as well as believed.
There is nothing magic about IV. It's all about MIC. You can reach MIC with doxy
orally as well.

They just want us to go away and die and in my case I think they may well
have succeeded.

Stay away from western doctors. They don't know about medicine.
Be your own doctor. Forget about IV. Orals will cure you but it will go slowly.
Health & wisdom,
Frank

[Treebeard]

Post by Kevin Raggett
Hello,
I have never posted here before.
For the most part, I am too ill to use my computer. However, when I feel
well enough (a rare but wonderful feeling)
I tend to use it for pleasure (no, not surfing porn sites but watching DVD's
or just looking at sites which have
nothing to do with Lyme).
It took me a long time to work out what was wrong with me and 3 years in bed
with Chronic Fatigue Syndrome
(ha ha ha). The Internet and 2 visits to America showed me +ve for Lyme both
IgG, IgM and PCR. Thanks to the
many people who have tried to help me - if only you could be my Doctor's
perhaps the dwindling hope I have could be
rekindled and new fidght put into me.
My return to the UK where we are 10 or more years behind in LD (i.e. there
is no such thing as Chrnonic LD and it
certainly does not put you in bed indefinetely) led me tot my fight for IV
ABX.
They refused me this medication so I paid for it and infused it myself for 3
months - it had no apparent effect.
I then moved onto virtually every LD antibiotic you have ever heard of for
2.5 years. On many occasions I nearly died
as the battle began. I had oozing sores all over my body, my joints leaked a
clear burning toxin, so did my muscles, scalp
and pretty much everywhere else. There was so much spirochete in me I should
have been dead.
At the time of onset I was 34 years of age (I now trace the initial tick
bites which can still be seen on my scalp to age 25
when I frequented a deer park for walks, relaxation and the beginning of the
end of my life) and after 6 years I am still very ill.
The constannt battle for treatment, the massive debt I am in and the total
alck of improvement in my general health have
led me to the point of considering suicide seriously.
Partly, this message is one of those "Cries for Help" I guess. Another part
is addressing the question "Were we born to suffer
or to live healthy and happy lives?). I think the answer is obvious.
I recently had another Hickman put in after travelling to the USA. I tyen
began to administer IV Airtromycin and as ever yet more
filth oozed and sweated out of me. After 12 weeks I became very unwell and
stopped the anitbiotics. My doctor will not see me at
home and I have no contact or help from any able-bodied person, so I di not
know what was happening.
Well, I was admitted with life threatening Sepsis (multiple organisms
cultured in my blood, 4 to be exact) to my local hospital
where I was given 2 weeks of IV to control them.
I am now home again and have been asleep for> 10 days. I am sweating, weak
and feel like calling it a day).
Hugh doses of antibiotics.
Collodial Silver (Hype and Rubbish).
RIFE machines (I feel thse do have an effect against it but cannot kill
it).
Dr Zhangs protocol.
+ many more trust me.
Trying to be positive, I can say that a large amount of LD has been killed
in me.
The sores all over my body have reduced vastly.
Problem is, it is still largely in the nervous system and I cannot seem to
get past
this stage,. If I feel well 3 days a month I am lucky.
Anybody else out there this bad ? I'm sure there is ..................
Anybody think I should keep going. Would not blame if you said NO, because
Iam saying and feeling NO right now.
This is NOT a self pity post, although I admit it is pretty damn miserable -
6 years of this
and I feel kind of warranted in being a bit pissed off.
I just feel I cannot take much more and like many of us CANNOT GET years of
IV as required for such a high sprochete load.
They just want us to go away and die and in my case I think they may well
have succeeded.
If you would like to contact me (perhaps 'like' is the wrong word) with any
positive stories my email address
PLEASE : NO INSULTS, I QAM NOT IN THE MOOD
Take care all of you - I sincerly hope you are doing better than I
Kevin M Raggett, Manchester, UK

Sorry to hear it took so long to get treatment.

For people that have not been misdiagnosed and untreated for a long time, I
believe a spirochete has screwed itself into just about every cell in the
body, causing each cell to operate at reduced efficiency . Because they are
lodged in the cell they can not be gotten at by abx or the immune system.
When the cell naturally dies, at that point they are released into the
bloodstream where they look for another cell. This is the only time where
they are susceptible to abx. I believe the only thing we can do is to play
the waiting game and continue on abx until every cell in the body has been
renewed. I'm not really sure how long this takes, and what the side effects
are of staying on abx for that long are. I've heard that it takes 7 years
for every cell in the body to be replaced, but I've also heard other reports
that the longest a cell can live is 6 months. I'm not sure how long a keet
can live. Anyone??

I don't feel that IV is absolutely necessary in these situation, although it
helps to accelerate the process.

Jack

[Frank Andreas de Groot]

Jack, don't quote an entire long post, it's against nettiquette.

Post by Treebeard
For people that have not been misdiagnosed and untreated for a long time, I
believe a spirochete has screwed itself into just about every cell in the
body, causing each cell to operate at reduced efficiency .

Borreliae have a tropism for oxygen-poor tissues, cardiac tissue, joints and
myelin.

Post by Treebeard
Because they are
lodged in the cell they can not be gotten at by abx or the immune system.

Doxycycline and several other abx. are INTRACELLULAR.

Post by Treebeard
When the cell naturally dies, at that point they are released into the
bloodstream where they look for another cell.

Why would they be released in the bloodstream? Why not take the next cell?
Do you just have theories based on no understanding of the subject matter?

Post by Treebeard
This is the only time where they are susceptible to abx.

Nonsense.

Post by Treebeard
I believe the only thing we can do is to play
the waiting game and continue on abx until every cell in the body has been
renewed.

Nonsense.

Post by Treebeard
I'm not really sure how long this takes, and what the side effects
are of staying on abx for that long are. I've heard that it takes 7 years
for every cell in the body to be replaced, but I've also heard other reports
that the longest a cell can live is 6 months.

Fibroblasts live up to 2 months. Neurons much longer /forever.

[Peace]

Frank, maybe you can educate Jack rather than just blowing what he says
out of the water? Jack was obviously trying to help, not hurt so his
intentions were good. Maybe I'm misinterpreting the 'tone' of you post?
I know I appreciate the information you have given in the past.

Jen